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Outcome measures in the SPHERES NMOSD Registry.

Among the variables we collect, some of the key outcome measures to inform your research include:

Clinician Reported Outcomes
  • Montreal Cognitive Assessment (MoCA)
  • Expanded Disability Status Scale (EDSS)
  • Relapse event details including location of manifestation for adjudication purposes
Patient Reported Outcomes
  • Modified Fatigue Impact Scale (MFIS)
  • painDETECT Questionnaire (PD-Q)
  • EQ-5D-5L
  • Short-form McGill Pain Questionnaire (SF-MPQ-2)
  • Pain severity NRS
  • Patient Health Questionnaire (PHQ-2)
  • National Eye Institute Visual Function Questionnaire Utility Index (NEI VFQ-UI)
  • Treatment Satisfaction Questionnaire (TSQM-9)

Our Publications

Other Registries

Our patient registries track information about the health status of patients and the care they receive. They bring together large data sets and analyze patterns in treatments and outcomes to inform best practices and treatment decisions.