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Patient Experience Publications

Powell, V., Barkin, J., Delk, T., “Symptoms, burden, and unmet needs of patients living with exocrine pancreatic insufficiency: a narrative review of the patient experience.” BMC Gastroenterology, Volume 24, article number 101. 14 March 2024. Article.

Barkin, J. MD, Hernandez-Barco, Y. MD, Al-Kaade, S. MD, Pannala, R. MD, Pack, J MSN, ACNP-BC, Powell, V MS, Whitcomb, D MD, PhD. “Characterizing Abdominal Pain and Alternative Treatment Approaches for Pain in an Online Patient Community for Chronic Pancreatitis.” American Pancreatic Association (APA). 03-06 November 2022, Orlando, FL. Poster presentation.

Barkin, J. MD, Hernandez-Barco, Y. MD, Al-Kaade, S. MD, Pannala, R. MD, Pack, J MSN, ACNP-BC, Powell, V MS, Whitcomb, D MD, PhD. “Patient Experience Analysis of an Online Community of Patients With Exocrine Pancreatic Insufficiency Due to Chronic Pancreatitis Using a Patient-Centered Observational Approach.” American College of Gastroenterology (ACG) Annual Scientific Meeting and Postgraduate Course. 24 Oct 2022. Poster presentation. American Pancreatic Association (APA). 03-06 November 2022, Orlando, FL. Encore poster presentation.

Barkin, J. MD, Hernandez-Barco, Y. MD, Al-Kaade, S. MD, Pannala, R. MD, Pack, J MSN, ACNP-BC, Powell, V MS, Whitcomb, D MD, PhD. “Patient Experience Living With Exocrine Pancreatic Insufficiency: A Targeted Literature Review.” American Pancreatic Association (APA). 03-06 November 2022, Orlando, FL. Poster presentation.

Barkin, J. MD, Hernandez-Barco, Y. MD, Al-Kaade, S. MD, Pannala, R. MD, Pack, J MSN, ACNP-BC, Powell, V MS, Whitcomb, D MD, PhD. “The Voice of the Patient With Exocrine Pancreatic Insufficiency Secondary to Chronic Pancreatitis: Preliminary Findings From a Patient-Driven Registry.” American Pancreatic Association (APA). 03-06 November 2022, Orlando, FL. Encore poster presentation.

Barkin, J. MD, Hernandez-Barco, Y. MD, Al-Kaade, S. MD, Pannala, R. MD, Twal, J, PharmD, Powell, V MS, Whitcomb, D MD, PhD. “The Voice of the Patient With Exocrine Pancreatic Insufficiency Secondary to Chronic Pancreatitis: Preliminary Findings From a Patient-Driven Registry.” American College of Gastroenterology (ACG) Annual Scientific Meeting and Postgraduate Course. 24 Oct 2022. Poster presentation.

Elmer, M., Vichnin, M., Karantza, V., Aktan, G., Powell, V. “Leveraging Patient Engagement to Optimize a Phase 3 Clinical Trial Design, Study Participation and Recruitment for Women Diagnosed with Triple-negative Breast Cancer (TNBC).” 2022 ASCO Annual Meeting, 6 June 2022, Chicago, IL. Poster presentation.

Franchetti, K., RN and Powell, V. “Immersing Your Commercial Team in the Patient Experience.” Patient Summit, 03 Nov 2017, Philadelphia, PA. Conference presentation.

Franchetti, K., RN and Powell, V. “Partnering with Patients for Clinical Trial Success.” Orphan Drugs and Rare Diseases, Americas, 12 Sep 2017, San Francisco, CA. Pre-conference workshop.

Murray, M., Powell, V., et. al. “The Changing Role of Employers In Healthcare.” DIA Annual Meeting, 25 June 2019. San Diego, CA. Conference presentation.

Powell, V., Steel, A, and Howard, T. “COVID-19 Interruption of Care Survey Highlights Need for Optimized Healthcare Utilization: Individuals with Chronic Conditions Impacted by Diminished Resources and Restrictions.” DIA Global, 71 June 2020 – 1 July 2020 (virtual). Poster presentation.

Powell, V. “Developing a Patient-Centric Online Registry.” Patients as Partners, 16 Mar 2018, Philadelphia, PA. Conference presentation.

Powell, V and Church, S. “Engaging in Online Communities is Associated with Improvements in Patient Activation.” DIA Global,20 June 2021, Chicago, IL. Poster presentation.

Powell, V., Hernandez-Barco, Y. MD, Barkin, J MD, Alkaade, S MD, Pannala, R MD, Decktor, D PhD MBA, Twal, J PharmD, Pack, J MSN, ACNP-BC, Frommer, C, Whitcomb, D MD PhD. “Innovative Real-World Experience (RWE) Generation: Supplementing Registry Data with Patient Community Input for In-Depth Patient Understanding.” ISPOR 2022, 17 May 2022, Washington, DC. Poster presentation. PancreasFest 2022: Pancreas 306∞ (PF22). 21-22 July 2022, Pittsburgh, PA. Encore poster presentation.

Powell, V. and Thatch. L., RN. “Insight of the Week.” Mapi Group website. Feb 2017 – May 2017. https://mapigroup.com/patient-insights-and-engagement-blog/.

Powell, V. “Medical Communications: Integrating the Patient Voice.” DIA Annual Meeting, 20 Jun 2017, Chicago, IL. Conference presentation.

Powell, V. “Obtaining Patient Insights in Uncertain Times.” HealthiVibe website. 5 Mar 2020. https://blog.healthivibe.com/wp-content/uploads/2020/03/Obtaining-Patien…

Powell, V. “One Size Does Not Fit All: Retention Methods Custom-Designed for Your Specific Patient Population.” DIA Annual Meeting, 20 Jun 2017, Chicago IL. Conference presentation.

Powell, V. “Rare Disease Clinical Trial Design: Incorporating the Patient Perspective.” The Rare Disease Collaboration Summit, 12 July 2016, Philadelphia PA. Conference presentation.

Powell, V. “Selecting the Right Patient for your Next Patient Voice Project.” Summit for Clinical Ops Executives, 21 Feb 2020, Orlando FL. Conference presentation.

Powell, V., GeDay, M., Kallsen, K., Myles, J., and Julian, S. “Simulating Trial Activities with Patients: Our Experiences” DIA Global, 21 June 2022, Chicago, IL. Conference panel discussion.

Powell, V. “The Impact of Patient Insights: Applications from Clinical Development to Commercialization.” Patients As Partners, 14 March 2106, Philadelphia, PA. Conference presentation.

Powell, V., Thompon, S., Wonderlich, G. and GeDay, M., and Howard, T. “The Patient Experience with Digital Technology.” DIA Digital Technology in Clinical Trials, 27 October 2020 (virtual). Conference panel discussion.