PORTLAND, Ore. (March 28, 2016) — The Corrona Psoriasis Registry, a joint collaboration between the National Psoriasis Foundation (NPF) and Corrona, LLC, a health research company that sponsors disease registries to advance medical research and improve patient care, is approaching the one-year anniversary of enrolling its first patient in April 2015.
To date, the registry has enrolled over 1,000 patients from 100 sites, where dermatologists assess patients every six months during routine visits and fill out a comprehensive questionnaire. Patients participating in the registry will be tracked for at least eight years, and the information collected will be used by researchers to compare the safety and effectiveness of psoriasis treatments, study diseases associated with psoriasis, and better understand the natural history of the disease.
“The achievement of these milestones demonstrates the potential impact of this unique resource for the psoriasis community, providing us with real world data on novel psoriasis treatments,” said Dr. Mark Lebwohl, scientific co-director of the Corrona Psoriasis Registry, and chairman emeritus of the NPF Medical Board.
The registry continues to recruit dermatologists who are treating people with moderate to severe psoriasis with biologics or systemic medications. Please email psoriasis@corrona.org for more information. Through this registry, Corrona LLC, expects over 200 dermatology sites to be added to their expansive network of sites.
“We are honored to have the commitment and active participation of 100 dermatology practices across the United States,” said Dr. Jeffrey Greenberg, chief scientific officer of Corrona, LLC. “The contribution by dermatologists collecting data will allow us to study comparative effectiveness and safety of newly approved therapies for their patients with psoriasis.”
Psoriasis is a chronic, immunodysregulatory disease that appears on the skin. It occurs when the immune system sends out faulty signals that speed up the growth cycle of skin cells. Psoriasis is not contagious. Psoriasis is the most common autoimmune disease in the U.S. As many as 7.5 million Americans have psoriasis.
About the National Psoriasis Foundation
National Psoriasis Foundation (NPF) is the world’s largest nonprofit serving those with psoriasis and psoriatic arthritis. Our priority is to provide the information and services people need to take control of their condition, while increasing research to find a cure. In addition to serving more than 2.1 million people annually through our health education and advocacy initiatives, NPF has funded more than $13 million in psoriatic disease research grants and fellowships. Learn more about the Psoriasis Foundation at www.psoriasis.org or call 800-723-9166. Follow us on Facebook and Twitter .